16 april 2022: Bron: Kennislink en The Ethical Committee BMS of the University of Twente

Vorig jaar werd een studie gepubliceerd over hoe mensen omgaan met de diagnose kanker en Kennislink interviewde 26 kankerpatiënten n.a.v. die studie waaraan de universiteit van Twente en Groningen meewerkten. 

Hoe vullen mensen hun leven in na de diagnose kanker? Uit dat onderzoek uit 2021 weten we dat dit te maken heeft met hoe kritisch of compassievol we naar onszelf zijn.
Zelfkritiek betekent jezelf naar beneden halen en veroordelen: ‘Wat doe ik allemaal fout?’.
Zelfcompassie betekent jezelf ondersteunen in moeilijke tijden.

Vier thema's met betrekking tot zelfkritiek kwamen naar voren in de studie:

  • (1) hard of streng zijn voor jezelf,
  • (2) je schuldig of boos voelen,
  • (3) je nutteloos of een last voelen,
  • (4) je schamen en geen zwakte willen tonen.
En zes thema's met betrekking tot zelfcompassie bleken belangrijk:
  • (1) mild zijn voor jezelf,
  • (2) je grenzen bewaken,
  • (3) de ziekte en beperkingen accepteren,
  • (4) een positief perspectief behouden,
  • (5) verbinding maken met anderen,
  • (6) verantwoordelijkheid nemen voor uw gezondheid. 

De studie geeft nog veel meer details, klik op de titel voor het studierapport: 

Experiences of Self-Criticism and Self-Compassion in People Diagnosed With Cancer: A Multimethod Qualitative Study 

Kennislink interviewde 26 kankerpatiënten en schreef daar een artikel over. Een artikel dat ik ongewijzigd plaats:

Je hebt kanker en je bent streng voor jezelf 

Zesentwintig mensen met kanker vroegen wij uitgebreid hoe ze met zichzelf omgingen in de moeilijke tijd na hun diagnose. In dit artikel lees je de resultaten van deze interviewstudie.

Mensen met kanker krijgen te maken met allerlei lichamelijke, sociale en emotionele gevolgen van de diagnose en behandeling. Ze kunnen last hebben van lichamelijke klachten zoals vermoeidheid en misselijkheid bij chemotherapie. Soms moeten mensen stoppen of minderen met werken. Of hebben ze ineens een andere rol in hun relaties, bijvoorbeeld omdat hun partner veel meer voor ze moet zorgen. Veel mensen hebben last van angst en sombere gevoelens.

Hoe gaan mensen met al de gevolgen van de ziekte om? Uit eerder onderzoek weten we dat dit te maken heeft met hoe kritisch of compassievol we naar onszelf zijn. Zelfkritiek betekent jezelf naar beneden halen en veroordelen. De focus ligt op: ‘Wat doe ik allemaal fout?’. Zelfcompassie betekent jezelf ondersteunen in moeilijke tijden. De focus ligt op: ‘Wat speelt er en wat heb ik nodig?’. We weten dat zelfcompassie helpt bij het verbeteren van je mentale gezondheid. Maar over de eigen ervaringen van mensen met kanker hiermee is nog niet zoveel bekend.

Interviews over zelfkritiek en zelfcompassie

Om hier meer inzicht in te krijgen interviewden wij 26 mensen met verschillende vormen van kanker en met verschillende achtergronden over hun ervaringen met zelfkritiek en zelfcompassie. Via verpleegkundigen in het ziekenhuis en via sociale media riepen we mensen op om mee te doen. Vooraf aan het interview probeerden de deelnemers twee weken lang zelfcompassie-oefeningen uit, voor een paar minuten per dag. Bijvoorbeeld een oefening waarbij je stilstaat bij hoe je jezelf behandelt vergeleken met een vriend(in) die het moeilijk heeft. Zo dachten mensen alvast na over hun ervaringen met zelfkritiek en zelfcompassie.>>>>>>>>>lees verder  

Hier het abstract van de internationale studie waaraan ook universiteit van Twente en Groningen meewerkten:

ORIGINAL RESEARCH article

Front. Psychol., 13 October 2021 | https://doi.org/10.3389/fpsyg.2021.737725

Experiences of Self-Criticism and Self-Compassion in People Diagnosed With Cancer: A Multimethod Qualitative Study

  • 1Department of Psychology, Health and Technology, Faculty of Behavioural, Management and Social Sciences, University of Twente, Enschede, Netherlands
  • 2Department of Health Psychology, University Medical Center Groningen, Groningen, Netherlands

Objective: Self-criticism is a self-condemning and self-compassion a supportive style of self-to-self relating. These concepts have increasingly been studied in people with cancer, but mainly with quantitative studies. This study is the first to explore how adult cancer patients experience self-criticism and self-compassion in the context of their illness.

Design: A multimethod qualitative study design was used, combining individual and group semi-structured interviews. Participants were 26 people with cancer who familiarized themselves with the topic by doing various self-compassion exercises for 2 weeks prior to the interview. Individual and group interviews were analyzed together using thematic analysis.

Results: Four themes regarding self-criticism were identified: (1) being harsh or strict with yourself, (2) feeling guilty or angry, (3) feeling useless or like a burden, (4) feeling ashamed and not wanting to show weakness. Six themes regarding self-compassion were identified: (1) being mild to yourself, (2) guarding your boundaries, (3) accepting the illness and limitations, (4) maintaining a positive perspective, (5) connecting to others, and (6) taking responsibility for your health.

Conclusion: Our findings offer insights into practical and daily life experiences of self-criticism and self-compassion of people with cancer, which can aid the further development of theory, scales and interventions.

References

Alizadeh, S., Khanahmadi, S., Vedadhir, A., and Barjasteh, S. (2018). The relationship between resilience with self- compassion, social support and sense of belonging in women with breast cancer. Asian Pacif. J. Cancer Prevent. 19, 2469–2474. doi: 10.22034/APJCP.2018.19.9.2469

PubMed Abstract | CrossRef Full Text | Google Scholar

Ann, M. B., Kathi, M., Amy, A.-P., William, S. B., Kristen, M. C., David, C., et al. (2015). Cancer-Related Fatigue, Version 2.2015. J. Natl. Compr. Cancer Netw. 13, 1012–1039. doi: 10.6004/jnccn.2015.0122

PubMed Abstract | CrossRef Full Text | Google Scholar

Austin, J., Drossaert, C. H. C., and Bohlmeijer, E. T. (in press). “Self-compassion as a resource of resilience” in Handbook of Self-compassion. (eds) A. Finlay-Jones, K. Bluth, and K. Neff (Germany: Springer).

Google Scholar

Austin, J., Drossaert, C. H. C., Schroevers, M. J., Sanderman, R., Kirby, J. N., and Bohlmeijer, E. T. (2021). Compassion-based interventions for people with long-term physical conditions: a mixed methods systematic review. Psychol. Health 36, 16–42. doi: 10.1080/08870446.2019.1699090

PubMed Abstract | CrossRef Full Text | Google Scholar

Austin, J., Van Dijk, J., and Drossaert, C. H. C. (2020). When Theory Meets Users in Co-design: four Strategies Towards Synergy Between Bottom-up and Top-down Input. Netherlands: University of Twente.

Google Scholar

Bennett, K. K., Compas, B. E., Beckjord, E., and Glinder, J. G. (2005). Self-blame and distress among women with newly diagnosed breast cancer. J. Behav. Med. 28, 313–323.

Google Scholar

Blalock, S., DeVellis, B., and Giorgino, K. (1995). The relationship between coping and psychological well-being among people with osteoarthritis: a problem-specific approach. Ann. Behav. Med. 17, 107–115. doi: 10.1007/BF02895059

PubMed Abstract | CrossRef Full Text | Google Scholar

Braun, V., and Clarke, V. (2014). What can “thematic analysis” offer health and wellbeing researchers? Int. J. Q. Stud. Health Well Being 9, doi: 10.3402/qhw.v9.26152

PubMed Abstract | CrossRef Full Text | Google Scholar

Brennan, J. (2001). Adjustment to cancer—coping or personal transition? Psychooncology 10, 1–18.

Google Scholar

Callebaut, L., Molyneux, P., and Alexander, T. (2017). The Relationship Between Self-Blame for the Onset of a Chronic Physical Health Condition and Emotional Distress: a Systematic Literature Review. Clin. Psychol. Psychother. 24, 965–986. doi: 10.1002/cpp.2061

PubMed Abstract | CrossRef Full Text | Google Scholar

Campos, R. C., Besser, A., Ferreira, R., and Blatt, S. J. (2012). Self-criticism, neediness, and distress among women undergoing treatment for breast cancer: a preliminary test of the moderating role of adjustment to illness. Int. J. Stress Manag. 19, 151–174. doi: 10.1037/a0027996

CrossRef Full Text | Google Scholar

Carter, S., and Henderson, L. (2005). “Approaches to data collection in social science” in Handbook of Health Research Methods: investigation, Measurement and Analysis. eds A. Bowling and S. Ebrahim (United Kingdom: Open University Press). 215–229.

Google Scholar

Diehl, J. C. (2009). “Creativity techniques” in Design for Sustainability: a Step-by-step Approach. eds M. Crul, J. C. Diehl, C. Ryan, T. Lindquist, U. Tischner, and C. Vezzoli (Kenya: United Nations Environment Program).

Google Scholar

Else-Quest, N. M., LoConte, N. K., Schiller, J. H., and Hyde, J. S. (2009). Perceived stigma, self-blame, and adjustment among lung, breast and prostate cancer patients. Psychol. Health 24, 949–964. doi: 10.1080/08870440802074664

PubMed Abstract | CrossRef Full Text | Google Scholar

Frank, P., Stanszus, L., Fischer, D., Kehnel, K., and Grossman, P. (2019). Cross-Fertilizing Qualitative Perspectives on Effects of a Mindfulness-Based Intervention: an Empirical Comparison of Four Methodical Approaches. Mindfulness 10, 2452–2467. doi: 10.1007/s12671-019-01227-2

CrossRef Full Text | Google Scholar

Gilbert, P. (2009). Introducing compassion-focused therapy. Adv. Psychiatr. Treat. 15, 199–208. doi: 10.1192/apt.bp.107.005264

CrossRef Full Text | Google Scholar

Gilbert, P. (2010). “Self-criticism,” in Compassion Focused Therapy: Distinctive Features (Taylor, MICH: East Sussex), 93–100.

Google Scholar

Gilbert, P. (2014). The origins and nature of compassion focused therapy. Br. J. Clin. Psychol. 53, 6–41. doi: 10.1111/bjc.12043

PubMed Abstract | CrossRef Full Text | Google Scholar

Gilbert, P., Basran, J., MacArthur, M., and Kirby, J. N. (2019). Differences in the Semantics of Prosocial Words: an Exploration of Compassion and Kindness. Mindfulness 10, 2259–2271. doi: 10.1007/s12671-019-01191-x

CrossRef Full Text | Google Scholar

Gilbert, P., and Procter, S. (2006). Compassionate mind training for people with high shame and self-criticism: overview and pilot study of a group therapy approach. Clin. Psychol. Psychother. 13, 353–379. doi: 10.1002/cpp.507

CrossRef Full Text | Google Scholar

Halamová, J., Baránková, M., Strnádelová, B., and Koróniová, J. (2018). Consensual qualitative research on free associations for compassion and self-compassion. Hum. Affairs 28, 253–270.

Google Scholar

Hulsbergen, M., and Bohlmeijer, E. T. (2015). Compassie Als Sleutel Tot Geluk; Voorbij Stress En Zelfkritiek. Netherlands: Uitgeverij Boom.

Google Scholar

Irons, C., and Beaumont, E. (2017). The Compassionate Mind Workbook: a Step-by-step Guide to Developing your Compassionate Self, London.

Google Scholar

Janda, M., Gerstner, N., Obermair, A., Fuerst, A., Wachter, S., Dieckmann, K., et al. (2000). Quality of life changes during conformal radiation therapy for prostate carcinoma. Cancer 89, 1322–1328.

Google Scholar

Lambert, S. D., and Loiselle, C. G. (2008). Combining individual interviews and focus groups to enhance data richness. J. Adv. Nurs. 62, 228–237. doi: 10.1111/j.1365-2648.2007.04559.x

PubMed Abstract | CrossRef Full Text | Google Scholar

Lathren, C., Bluth, K., Campo, R., Tan, W., and Futch, W. (2018). Young adult cancer survivors’ experiences with a mindful self-compassion (MSC) video-chat intervention: a qualitative analysis. Self Ident. 17, 646–665. doi: 10.1080/15298868.2018.1451363

PubMed Abstract | CrossRef Full Text | Google Scholar

López, A., Sanderman, R., Ranchor, A. V., and Schroevers, M. J. (2018). Compassion for Others and Self-Compassion: levels, Correlates, and Relationship with Psychological Well-being. Mindfulness 9, 325–331. doi: 10.1007/s12671-017-0777-z

PubMed Abstract | CrossRef Full Text | Google Scholar

Lueke, N., and Skeel, R. (2017). The effect of self-criticism on working memory in females following success and failure. Pers. Ind. Diff. 111, 318–323. doi: 10.1016/j.paid.2017.02.035

CrossRef Full Text | Google Scholar

Marlow, L. A. V., Waller, J., and Wardle, J. (2010). Variation in Blame Attributions across Different Cancer Types. Cancer Epidemiol. Biomark. Amp Prevent. 19:1799. doi: 10.1158/1055-9965.EPI-09-1298

PubMed Abstract | CrossRef Full Text | Google Scholar

Neff, K. (2013). Self-Compassion Step by Step : the Proven Power of Being Kind to Yourself. United States: Sounds True Incorporated.

Google Scholar

Neff, K. (2016). The Self-Compassion Scale is a Valid and Theoretically Coherent Measure of Self-Compassion. Mindfulness 7, 264–274. doi: 10.1007/s12671-015-0479-3

CrossRef Full Text | Google Scholar

Neff, K., and Germer, C. (2018). The Mindful Self-Compassion Workbook: a Proven Way to Accept Yourself, Build Inner Strength, and Thriveÿ ÿ. United States: Guilford Publications.

Google Scholar

Pauley, G., and McPherson, S. (2010). The experience and meaning of compassion and self-compassion for individuals with depression or anxiety. Psychol. Psychother. 83, 129–143. doi: 10.1348/147608309x471000

PubMed Abstract | CrossRef Full Text | Google Scholar

Pinto-Gouveia, J., Duarte, C., Matos, M., and Fráguas, S. (2014). The protective role of self-compassion in relation to psychopathology symptoms and quality of life in chronic and in cancer patients. Clin. Psychol. Psychother. 21, 311–323.

Google Scholar

Przezdziecki, A., Sherman, K. A., Baillie, A., Taylor, A., Foley, E., and Stalgis-Bilinski, K. (2013). My changed body: breast cancer, body image, distress and self-compassion. Psychooncology 22, 1872–1879.

Google Scholar

Refsgaard, B., and Frederiksen, K. (2013). Illness-Related Emotional Experiences of Patients Living With Incurable Lung Cancer: a Qualitative Metasynthesis. Cancer Nurs. 36, 221–228. doi: 10.1097/NCC.0b013e318268f983

PubMed Abstract | CrossRef Full Text | Google Scholar

Sirois, F. M., and Hirsch, J. K. (2019). Self-Compassion and Adherence in Five Medical Samples: the Role of Stress. Mindfulness 10, 46–54. doi: 10.1007/s12671-018-0945-9

PubMed Abstract | CrossRef Full Text | Google Scholar

Todorov, N., Sherman, K. A., and Kilby, C. J. (2019). Self-compassion and hope in the context of body image disturbance and distress in breast cancer survivors. Psychooncology 28, 2025–2032. doi: 10.1002/pon.5187

PubMed Abstract | CrossRef Full Text | Google Scholar

Trindade, I. A., Ferreira, C., Borrego, M., Ponte, A., Carvalho, C., and Pinto-Gouveia, J. (2018). Going beyond social support: fear of receiving compassion from others predicts depression symptoms in breast cancer patients. J. Psychosoc. Oncol. 36, 520–528.

Google Scholar

Ussher, J., Kirsten, L., Butow, P., and Sandoval, M. (2006). What do cancer support groups provide which other supportive relationships do not? The experience of peer support groups for people with cancer. Soc. Sci. Med. 62, 2565–2576. doi: 10.1016/j.socscimed.2005.10.034

PubMed Abstract | CrossRef Full Text | Google Scholar

Van den Brink, E., and Koster, F. (2019). Compassie in Je Leven - Herziening: mindfulness Verdiepen Met Heartfulness. Amsterdam: Boom uitgevers Amsterdam.

Google Scholar

Warren, R., Smeets, E., and Neff, K. (2016). Being compassionate to oneself is associated with emotional resilience and psychological well-being. Curr. Psychiatr. 15, 18–32.

Google Scholar

Wiseman, H. (2005). Interpersonal relatedness and self-definition in the experience of loneliness during the transition to university. Pers. Relationsh. 4, 285–299. doi: 10.1111/j.1475-6811.1997.tb00146.x

CrossRef Full Text | Google Scholar

Zabora, J., BrintzenhofeSzoc, K., Curbow, B., Hooker, C., and Piantadosi, S. (2001). The prevalence of psychological distress by cancer site. Psychooncology 10, 19–28.

Google Scholar

Zhang, H., Watson-Singleton, N. N., Pollard, S. E., Pittman, D. M., Lamis, D. A., Fischer, N. L., et al. (2019). Self-Criticism and Depressive Symptoms: mediating Role of Self-Compassion. Omega 80, 202–223. doi: 10.1177/0030222817729609

PubMed Abstract | CrossRef Full Text | Google Scholar

Zhu, L., Yao, J., Wang, J., Wu, L., Gao, Y., Xie, J., et al. (2019). The predictive role of self-compassion in cancer patients’ symptoms of depression, anxiety, and fatigue: a longitudinal study. Psychooncology 28, 1918–1925. doi: 10.1002/pon.5174

PubMed Abstract | CrossRef Full Text | Google Scholar

Appendix

Interview Guide

Part I: diagnosis, treatment and well-being of participant

• Introduction: aims, practical and background information of the study and the background and motivation of the interviewer.

• Illness-information: diagnosis, time since diagnosis, (experience of) received treatment, how the participant currently is doing.

Part II: experiences of self-criticism, self-compassion and the exercises

Brief evaluation of exercises (use, appreciation, perceived effect and intention for further use) in general and per exercise.

1. What is your impression of the concept self-compassion(/self-criticism)? Why does or doesn’t self-compassion(/self-criticism) fit with the situation of people with cancer?

[Exercise 1]

2. Can you think of examples when you were self-critical? Can you think of examples when you were self-compassionate?

[Exercise 2]

3. In what ways do you recognize the three emotion systems in your own life? Has your cancer diagnosis changed anything in the balance between the three systems?

[Exercise 3 and 6]

4. How would you describe self-compassion in your own words? (examples) Is this different after the diagnosis compared to before?

5. In a difficult moment, to what extent do you think you could remember to have compassion for yourself? To what extent are you able to have distance from a difficult situation, or are you overwhelmed by thoughts and feelings? How was this in the time after the diagnosis?

6. Did the diagnosis affect how connected or isolated you feel from other people? (examples)

Note: Additional questions were asked about giving and receiving compassion [Exercises 4 and 5], which were not part of the current study. There were no specific questions for [Exercise 7/8]; this reflection exercise already included questions such as “In what ways was I kind to myself today?” which were during the evaluation of the exercise.

Part III: demographic information and wrapping up

• Are there any topics that we have missed? Is there anything that you would like to add?

• Demographic questions (gender, age, marital status, employment status, education).

• Wrapping up: asking if the participant knows any other potential participants, asking whether participant wants to receive study results.






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