Plaats een reactie ...

2 Reacties op "Sonia studie: Borstkanker wordt vaak overbehandeld. Erasmus MC doet daar wat aan via de Sonia studie. copy 1"

• Venus Waterman :
  01/04/2019
  Dear Sir/Madamme,
  
  How are you ?My name is Venus Waterman.
  My biopsy was stated positive for BC on the 18th of febuary then I underwent several testings and second opinion a before getting the final diagnosis till now.
  
  
  My Files only missing items are my PET Scans and MRI :
  
  https://we.tl/t-jQTlQ0QtuG
  
  
  My diagnosis so far and supplements :
  
  T2N1M?
  
  Tumor Grade : Grade 1
  Tumor size : 4.8 cm approximately
  Tumor sort : ER and PR Positive for 90 %
  Lymph : 1 lymph node right side between 0.2 mmm
  
  I have my BRCA 1& 2 genetic test results on the 2nd of April.
  
  After a PET & MRI scan in the week of the 25th of February they declared that I had a visible spot on :
  
  - my left lymph
  - left breast
  - right ovary
  
  I was then checked and given a fertility treatment option since I have no children, I subsequently stopped the fertility test after two days as I was scared that injecting hormones might aggravate hormone induced tumor(s) and no one could give me the assurance it would not.
  
  After examining all left spots they were all declared clear of cancer.
  But both hospitals did not trust the lest breast biopsy due to my dense breast tissue.
  Therefor I received this week second biopsy on both breasts . The left breast was done with an MRI biopsy procedure. They also placed a tracer in my left breast.
  
  The AVL and OLVG hospital gave me similar treatment plans for my cancer :
  
  AVL PLAN
  
  4 X (times ) ddAC treatments
  A = Adriamycin or Doxorubicin
  C = Cyclofosfamide or Endoxan
  Plus Neulasta shots on the second day
  
  12 X (times) weekly P Treatments
  P = Paclitaxel 60
  
  - MRI and 4/5 weeks rest
  
  - Opertaion on breast and lymph
  
  - MRI
  
  - 5 weeks rest
  - most probably radiation treatments
  
  - 5/10 years Hormone treatment daily
  
  Attached is a copy of their plan.
  
  OLVG PLAN
  
  
  1) Neo-adjuvante chemotherapie
  4x driewekelijks adriamycine/ cyclofosfamide gevolgd door 12x wekelijks paclitaxel
  2) 4-6 weken herstellen
  3) Borstsparende operatie danwel mastectomie (met evt reconstructie) afhankelijk van de respons/ uitslag DNA onderzoek/ jouw wens
  4) 4-6 weken herstellen
  5) Radiotherapie (bestralingen) duurt +/- 4 weken
  6) Adjuvante hormoontherapie (5-7jr)
  
  Since learning my diagnosis I have been taking the following supplements daily suggested to me by Maarten Klatte https://www.moeiteloosgezond.nl/over-ons/maarten-klatte/ :
  
  2x4 Pao-V-FM on empty stomach
  2x1 Altrient-C ,, ,, ,,
  1x1 Co-Q10 - 100mg
  2x1 Milk Thistle
  2x2 MycoMed
  2x1 Zinargin
  2 X 1 Altrivient GSH
  2 X 1 Dim complex
  2 X 1 Omega 3 1000 mg
  
  I have asked all 3 hospitals since I also got a consult at the Alexandre Monroe who gave me a copy paste treatment plan for both the Mammoprint and the ONCOTYPE DX tests and none of the hospitals deem me eligible for this .
  
  I have now opted to start chemotherapy at the AVL on the 16 th of April . But desperately want to get tested before to see if I react well to the chemo’s decided for me.
  
  Would I be a candidate for your testing ? I tricky hope so since I’m petrified of the extensive chemo cures and not knowing if this will work for my case.How can I get it contact with you organization directly ? This is my first little bit of hope in the in this nightmare called breast cancer diagnosis !
  
  Kind regards
  Venus Waterman
  
  06 10591344
  Comment
• • kees :
    01/04/2019
    Dear Venus,
    We aren't a hospital but just a website which mentions the Sonia study.
    
    In the protocol you can find the adres for more information: Voor medisch-inhoudelijke vragen, kunt u contact opnemen met:
    Promovendus/studie-coördinator
    Annemiek van Ommen-Nijhof
    T: 020 512 9068
    E-mail: a.nijhof@nki.nl
    
    With kindly regards, Kees Braam
    webmaster
    Comment